Advocacy Resources

Social Support Channels

TalkingAsthma encourages you to explore social media channels to expand your support community online. Here we offer some suggestions to help you find, for example, a Facebook Group that suits your interests. 

A Facebook Group is a place for group communication and for people to share their common interests and express their opinion. They let people come together around a common cause, issue, or activity to organize, express objectives, discuss issues, post photos, and share related content. 

TalkingAsthma is not affiliated with these Private Facebook Groups – please follow the TalkingAsthma Facebook page here: https://www.facebook.com/talkingasthma

“Asthma Support Group”

Join this private Facebook group at https://www.facebook.com/groups/615544601964794/ 

Description: This is an asthma support group, and has been created to give people a space to share knowledge and help one another! You are all welcome to add family, friends and people you know with asthma, and people who care for someone with asthma. 

“Asthma Support and Inspiration”

Join this private Facebook group at https://www.facebook.com/groups/AsthmaInspiration/

Description: An Open Forum for those with Asthma or those with Loved ones with Asthma. Sometimes we Just need answers that we might not know! 

“Asthma and Allergies in Children Support Group-USA only”

Join this private Facebook group at https://www.facebook.com/groups/1608472379412389

Description: This group is for parents and caregivers to come for support and ask questions related to asthma and allergies. This is for support and education only, and for residents of the United States only as treatment varies outside of the country.

“Asthma in Children support group”

Join this private Facebook group at https://www.facebook.com/groups/320992581287311/

Description: A group where parents of children with asthma, or asthma like problems, can share their experiences and provide each other with support.

“mommies of kids with asthma”

Join this private Facebook group at https://www.facebook.com/groups/6851478271 

Description: The purpose of this group is for parents of children with asthma to be able to ask questions and provide support to each other. Each of us are the best experts on our own children and the things we can share with each other benefit everyone. This group is meant to be just for parents/caretakers.

Associations & Networks

While not affiliated with these organizations, TalkingAsthma offers this collection of associations and networks to help asthma patients find relevant online resources and information.

Allergy and Asthma Network (AAN)

http://www.aanma.org/

The AAN is dedicated to helping people affected by allergies and asthma through education, advocacy, community outreach and research.

American Lung Association (ALA)

http://www.lungusa.org/

The ALA works to save lives by improving lung health and preventing lung disease through Education, Advocacy and Research. For more than 100 years, the ALA has been leading the fight for healthy lungs and healthy air. The association was among the first to tackle smoking as the nation’s greatest preventable health risk, and to make the connection between air pollution and lung disease. 

American Partnership of Eosinophilic Disorders (APFED)

This non-profit organization is dedicated to patients and their families coping with eosinophilic gastrointestinal disorders. APFED strives to expand education, create awareness, and support research while promoting advocacy among its members.

Asthma and Allergy Foundation of America (AAFA) 

http://www.aafa.org/

Founded in 1953, AAFA is the leading national patient organization for people with asthma and allergies, and the oldest asthma and allergy patient group in the world. AAFA is dedicated to improving the quality of life for people with asthma and allergies — including food allergies and anaphylaxis – and related diseases through education, advocacy, and research.

Food Allergy Research & Education (FARE)

http://www.foodallergy.org/

FARE works on behalf of the 32 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in 13 children in the United States – or roughly two in every classroom. FARE is a 501(c)(3) nonprofit organization that was formed in 2012 as the result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative. 

Immune Deficiency Foundation (IDF)

http://www.primaryimmune.org/

The IDF, founded in 1980, is the national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research. On behalf of those with primary immunodeficiency diseases, IDF offers educational programs and materials that offer medical information, important life management and patient care resources, and support for patients and family members. 

The FPIES Foundation

http://fpiesfoundation.org/

The FPIES Foundation is a 501c3 non profit organization dedicated to overcoming the challenges of Food Protein-Induced Enterocolitis Syndrome (FPIES) by offering tools for education, support, and advocacy to empower families and the medical community.

The Autoinflammatory Alliance

http://www.nomidalliance.org/

The NOMID alliance is a public charity promoting awareness, proper diagnosis and treatment of people with cryopyrin-associated periodic syndromes (CAPS) and other autoinflammatory syndromes.

U.S. Hereditary Angioedema Association

http://www.haea.org/

HAEA is a non-profit patient advocacy organization dedicated to expediting US approval of safer and more effective HAE therapies. They provide a wide range of services that include clinical trial placement, physician referrals, education, and individualized patient case management.